Arctic adventure for fundraising Larne paramedic

A Larne man is to take part in a 350-mile race across the Arctic Circle to raise funds for and awareness of his sister’s rare illness.
By The Newsroom
Published 14th Jan 2015, 10:15 BST
Jonathan Davies pictured with his sister Clare, who suffers from Smith-Magenis syndrome. INLT-03-701-conJonathan Davies pictured with his sister Clare, who suffers from Smith-Magenis syndrome. INLT-03-701-con
Jonathan Davies pictured with his sister Clare, who suffers from Smith-Magenis syndrome. INLT-03-701-con

Paramedic Jonny Davies, 33, will face hazards such as polar bears, wolves, moose and ice road truckers to complete the race in aid of the Smith-Magenis Foundation UK and Great Ormond Street hospital.

Jonny, who now lives in Northampton, told The Times he was motivated to take part in the Arctic race after his 27-year-old sister Clare, who attends Larne Adult Centre, was diagnosed with the condition.

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He explained: “Smith-Magenis syndrome is a chromosomal disorder. Clare suffers from behavioural problems, learning difficulties, quite severe scoliosis and epilepsy. She wasn’t diagnosed until she was 15 as this is a relatively newly-discovered syndrome.

“I hope to raise awareness as well as funds.”

For the full story see this week’s Larne Times, in shops now.

Related topics:LarneGreat Ormond Street HospitalNorthampton