Sight-loss group under closure threat

A COLERAINE-BASED support group for people living with the effects of macular disease – a condition that causes loss of central vision – is under threat of closure unless a volunteer leader can be found.

The Coleraine group was launched in March this year and is one of the Macular Disease Society’s (MDS) network of more than 200 support groups, nine of which are in Northern Ireland.

Members of the groups have a sight condition that can make it difficult to distinguish faces, watch television, or read. The Coleraine group meets once a month, and the majority of members have age-related macular degeneration, which affects older people.

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The group gives members a chance to share hints and tips and offer each other valuable support and friendship, while a variety of speakers ensures they are kept up to date about how to access local support and treatments.

Michelle Dutton, MDS Group Support and Development Manager for the North of the UK, said: “There is a wonderful group of people at Coleraine who all benefit greatly from the chance to meet with others with the same condition.

“This, coupled with the group activities, helps people to regain control, build their confidence and get on with living life.

“We would like to get more people to come along but feel worried the group will close unless we can find a group leader. The main responsibility would be to meet and greet new members, book speakers and chair the informal meetings.

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“The new volunteer group leader won’t be on their own – I am there to support the group as much as possible and provide lots of information on how to run a group effectively. We have lots of ideas to share and will put the leader in contact with other experienced group leaders, most of whom have macular disease themselves.”

Doris Cutler became leader of the MDS Enniskillen group last November. She said: “I have thoroughly enjoyed running the group. It’s a great feeling to know you are providing a space for people to come and know they are not alone. I would be more than happy to support anyone prepared to help the group survive.”

The position would suit someone who is newly-retired and who could offer around eight hours of their time every month.

If you would like to volunteer for the position please contact the Macular Disease Society Helpline on 0845 241 2041 or contact Michelle Thompson at the Causeway Volunteer Centre, on 028 7035 8285.